Disclosure: Duncan Cross provided me with a complementary copy of his book. I was not under any obligation to write a review. Product links in this post are for my Amazon Affiliate account.
My summer reading has a definite (unintentional) theme: books written by, or heavily featuring people I know. I joke […]
It was my great pleasure to meet AJ Montpetit from the Mayo Clinic Center for Innovation at HIMSS15 this year. We recorded this interview where I talk about my Crohn’s diagnosis, the story behind my Walking Gallery Jacket, getting into advocacy, and the way the Internet can help people with chronic […]
The hardworking folks at the Invisible Disabilities Association sent me a copy of their book “But You LOOK Good” and graciously included a second copy for me to give away. Figuring I know far too many friends with chronic illness, I’ve decided to host a randomized prize drawing.
The book’s full title, “But […]
Read my recap of the experience here: HIMSS15 Patient Advocate Recap
Tomorrow morning I fly to Chicago for HIMSS15 (imagine Disneyworld, but for Health IT and instead of EPCOT you’ve got a maze of vendor booths hawking the latest tech and software). All the preparation and buzz has me thinking about what I want from health IT. Everyone is trying to be the next Uber for […]
Last year, I was given an award by a well-known charity. The clear glass award was engraved with my name, and presented by a former Congressman in a ballroom just outside DC, in front of an audience full of doctors, lawyers, and philanthropists. The evening’s entertainer, a sweet young country singer straight from Nashville, shouted […]
The following is my application for the Cinderblocks 2 Patient Travel Scholarship.
This has been a hard Winter. My health has not been good, and my mental health has suffered as a result of less sunlight and more days on the couch instead of hanging out with friends. I woke up recently with a […]
“A Keynote Discussion on Using Data to Increase Patient Engagement – Stanford Medicine X 2014″
A big thank you to the team behind Stanford’s Medicine X conference for making this video available for free on their YouTube page (warning, auto-play audio).
[Update: Here’s the Washington Post’s 1/9/2015 article about the new campaign, with quotes from me and Metro officials: Saving seats: Metro’s new ads raise awareness of invisible disabilities]
This morning, I had an unexpected pep in my step for a Monday after a long break from work. WMATA […]