It feels like I’ve been preparing for this for ages, so it’s a little hard to believe that Stanford Medicine X is just a few days away! No longer a newbie, I’m feeling the pressure in different ways this year, but also know firsthand just how inspiring the event can be. I’ve got more responsibilities this year. I’m driving fellow ePatients to the hotel, chairing a main stage session, participating in a main stage panel, and presenting a findings on invisible pain and self-tracking that will finish up with a panel of distinguished ePatients.
Medicine X has a great way for you to stream the main stage programming at home through their free Global Access program. You need to register, but there is no cost and you’ll be able to watch the conference from Friday September 5 – Sunday September 7. Check out my post on tips for attending virtual events.
Thursday, September 4
I’ll be attending a Partnering for Health event on clinical trials with Eli Lilly & Co. This is a new program this year and as a two-time trial participant, I’m particularly interested to learn together.
Friday, September 5
Easing into day one of MedX proper!
Saturday, September 6
8:30 am (Plenary Hall) Keynote Discussion – Live-streaming
Charles Ornstein will join a distinguished panel of thought leaders in this exploration of how data can be used as a powerful tool for increasing patient engagement. Read more
Sunday, September 7
11:00 am (LK 102) – Not live-streaming
Unmasking invisible illness: What does pain look like?
This is the panel I’m responsible for, based on the disconnect between the way people with chronic pain often look and the way they feel. The phrase “but you don’t look sick!” is familiar to many patients, but the stereotypes of what legitimate pain looks like can cause patients harm when medical professionals don’t take them seriously. I’m extremely lucky that ePatients Emily Bradley, Joe Riffe, and Scott Strange will join me to discuss pain, appearance, and self-tracking. I’m particularly excited to be able to bring ePatient Summer Plum into the discussion as the first (to my knowledge) virtual panelist. This is a great opportunity for MedX to include voices of patients who may be excluded from attending in person due to medical realities. I hope this sparks a trend. Read more