It is a stressful, scary time for many of us Americans with disabilities and chronic medical conditions. My intention is not to engage in fear mongering or hyperbole. No matter what happens with the new political administration, an important part of democracy is participation. I have done political advocacy on behalf of people with chronic […]
This week, the Morning Consult published a piece I wrote about being forced to sell* my home to pay for health care while unemployed.
* the house sold for about half of what I owed on it, so it was a short sale that wrecked my credit for a few years and left me homeless.
You can read […]
Disclosure: Duncan Cross provided me with a complementary copy of his book. I was not under any obligation to write a review. Product links in this post are for my Amazon Affiliate account.
My summer reading has a definite (unintentional) theme: books written by, or heavily featuring people I know. I joke […]
It was my great pleasure to meet AJ Montpetit from the Mayo Clinic Center for Innovation at HIMSS15 this year. We recorded this interview where I talk about my Crohn’s diagnosis, the story behind my Walking Gallery Jacket, getting into advocacy, and the way the Internet can help people with chronic […]
The hardworking folks at the Invisible Disabilities Association sent me a copy of their book “But You LOOK Good” and graciously included a second copy for me to give away. Figuring I know far too many friends with chronic illness, I’ve decided to host a randomized prize drawing.
The book’s full title, “But […]
Read my recap of the experience here: HIMSS15 Patient Advocate Recap
Tomorrow morning I fly to Chicago for HIMSS15 (imagine Disneyworld, but for Health IT and instead of EPCOT you’ve got a maze of vendor booths hawking the latest tech and software). All the preparation and buzz has me thinking about what I want from health IT. Everyone is trying to be the next Uber for […]
Last year, I was given an award by a well-known charity. The clear glass award was engraved with my name, and presented by a former Congressman in a ballroom just outside DC, in front of an audience full of doctors, lawyers, and philanthropists. The evening’s entertainer, a sweet young country singer straight from Nashville, shouted […]
The following is my application for the Cinderblocks 2 Patient Travel Scholarship.
This has been a hard Winter. My health has not been good, and my mental health has suffered as a result of less sunlight and more days on the couch instead of hanging out with friends. I woke up recently with a […]