Carly Medosch, Emerging Leader Award
A diagnosis of Crohn’s Disease and multiple surgeries haven’t slowed down Carly Medosch. An active Take Steps fundraiser, Carly and her mother Mary Jo co-founded a CCFA support group in Fredericksburg.
A Program Analyst by day, Carly spends much of her free time advocating for all patients with chronic illness. She is passionate about breaking down silos between patient communities. Carly is the voice for our future.
Yesterday I was given the Emerging Leader Award by the Crohn’s and Colitis Foundation of America (CCFA) DC chapter. Here’s the blurb they printed in the program. Below is a video (sorry for the poor quality) of Representative Jim Moran introducing the award and my short acceptance comments.
That night I also met Bob Schieffer, who has been a journalist for decades. He had just interviewed George Bush and was going to interview Israeli Prime Minister Benjamin Netanyahu. He has had ulcerative colitis for many years and has worked with CCFA to speak out about IBD.
I also met a young woman who had just been diagnosed with Crohn’s disease in September and had surgery to remove 2 feet of her intestine. Last night’s dinner was her first CCFA event. She was extremely sweet, and even offered to drive all the way to our support group in Virginia! I could tell she was scared about her future – her doctors are trying her on a mid-level medication before deciding to bring out the Biologics, she’s having trouble finding foods that don’t cause her distress, and she’s not sure she will be able to give herself injections if it comes to that. People like this are why I’ve continued to do the support group and other advocacy efforts. These diseases are terrible, but even worse is the fear, doubt, and isolation that results. I was so glad I got to meet her and let her know she’s not alone.