In his video “The Slow Death of Compassion for the Chronically Ill,” Ken McKim theorizes that one reason compassion for people with Chronic illness are being saddled with unrealistic expectations due to the prevalence of inspiring stories. I was just talking to a friend about the fact that mainstream writing about […]
I am very fortunate to have met my friend Amy several years ago. We attended the same high school at the same time for a few years, but never knew each other until we were adults. When we were first introduced, she had not begun her illness journey and I was not quite comfortable with […]
It seems like lately I’ve heard several people advise patients to be calm and professional in their interactions with the medical community at large. Don’t be angry. Don’t be rude.
On the surface these all sound very reasonable! But the more I heard it from various people and panels, the more it started […]
I just finished listening to “The self-tracking patient” panel – part 3 of the Friday programming at Stanford’s Medicine X conference. The description from MedX’s website reads as follows:
Self-tracking involves the collection of any data that can be measured about one’s self over time. Focusing on the incorporation of technology into data […]
I’ve had Crohn’s disease for nearly 20 years, so while my diagnosis story is a bit dramatic, it all happened so long ago that the edges of the memories have faded a bit. When I was diagnosed, I didn’t know what Crohn’s was. I had literally only known one person who had it and I […]
“The talent of success is nothing more than doing what you can do, well.” ~ Henry W. Longfellow
This semester I am enrolled in the capstone class for my MBA program. We have a new-to-the-course professor this term and he begins each class with a mini lecture akin to a commencement speech. A recent lecture […]
Prior to the conference, I didn’t know many people going to Medicine X. Because I was staying with friends to save money, I’d miss out on some hotel-based bonding. Networking makes me break out in hives. What the heck was I doing flying across the country to hang out with total strangers?
I wasn’t expecting […]