Disclosure: Duncan Cross provided me with a complementary copy of his book. I was not under any obligation to write a review. Product links in this post are for my Amazon Affiliate account.
My summer reading has a definite (unintentional) theme: books written by, or heavily featuring people I know. I joke […]
Last year, I was given an award by a well-known charity. The clear glass award was engraved with my name, and presented by a former Congressman in a ballroom just outside DC, in front of an audience full of doctors, lawyers, and philanthropists. The evening’s entertainer, a sweet young country singer straight from Nashville, shouted […]
The following is my application for the Cinderblocks 2 Patient Travel Scholarship.
This has been a hard Winter. My health has not been good, and my mental health has suffered as a result of less sunlight and more days on the couch instead of hanging out with friends. I woke up recently with a […]
Carly Medosch, Emerging Leader Award
A diagnosis of Crohn’s Disease and multiple surgeries haven’t slowed down Carly Medosch. An active Take Steps fundraiser, Carly and her mother Mary Jo co-founded a CCFA support group in Fredericksburg.
A Program Analyst by day, Carly spends much of her free time advocating for […]
Thirteen years ago today I was in my off-campus apartment in Harrisonburg, VA, getting ready for an early class. I always had early classes and I always watched the news while I got ready. I saw all the footage of the terrorist attacks live. There was no news about classes being cancelled, so I went. […]
When I was 13, I was diagnosed with Crohn’s disease, a chronic inflammatory condition of the gastrointestinal tract, and from that point on nearly all of my major life choices have been made with it in mind, including picking a college major that would result in a job with health insurance.
An essay I wrote […]
This year, I had the honor to be featured in the Crohn’s and Colitis Foundation of America 2013 Annual Report. (Annual reports are the financial statements from the most recently completed fiscal year, which is why the date may seem wrong!) The gigantic photo of my face was taken by my dear, talented friend Nikki […]
In his video “The Slow Death of Compassion for the Chronically Ill,” Ken McKim theorizes that one reason compassion for people with Chronic illness are being saddled with unrealistic expectations due to the prevalence of inspiring stories. I was just talking to a friend about the fact that mainstream writing about […]
It seems like lately I’ve heard several people advise patients to be calm and professional in their interactions with the medical community at large. Don’t be angry. Don’t be rude.
On the surface these all sound very reasonable! But the more I heard it from various people and panels, the more it started […]
I’ve had Crohn’s disease for nearly 20 years, so while my diagnosis story is a bit dramatic, it all happened so long ago that the edges of the memories have faded a bit. When I was diagnosed, I didn’t know what Crohn’s was. I had literally only known one person who had it and I […]