The hardworking folks at the Invisible Disabilities Association sent me a copy of their book “But You LOOK Good” and graciously included a second copy for me to give away. Figuring I know far too many friends with chronic illness, I’ve decided to host a randomized prize drawing.
The book’s full title, “But […]
Last year, I was given an award by a well-known charity. The clear glass award was engraved with my name, and presented by a former Congressman in a ballroom just outside DC, in front of an audience full of doctors, lawyers, and philanthropists. The evening’s entertainer, a sweet young country singer straight from Nashville, shouted […]
The following is my application for the Cinderblocks 2 Patient Travel Scholarship.
This has been a hard Winter. My health has not been good, and my mental health has suffered as a result of less sunlight and more days on the couch instead of hanging out with friends. I woke up recently with a […]
[Update: Here’s the Washington Post’s 1/9/2015 article about the new campaign, with quotes from me and Metro officials: Saving seats: Metro’s new ads raise awareness of invisible disabilities]
This morning, I had an unexpected pep in my step for a Monday after a long break from work. WMATA […]
Shortly after I began driving, my pediatric gastroenterologist gave me the paperwork I needed to obtain handicapped parking accommodation. In my state, drivers have the choice between permanent handicapped license plates, or a removable tag that hangs from the rear view mirror. A a teenager, the choice was easy: removable hang tags allowed me the […]
Recent articles have brought attention to lack of diverse of patient voices heard at popular medical conferences. A Rock Health article (widely re-posted among epatients) points out the low numbers of female speakers:
I am very fortunate to have met my friend Amy several years ago. We attended the same high school at the same time for a few years, but never knew each other until we were adults. When we were first introduced, she had not begun her illness journey and I was not quite comfortable with […]
I’ve had Crohn’s disease for nearly 20 years, so while my diagnosis story is a bit dramatic, it all happened so long ago that the edges of the memories have faded a bit. When I was diagnosed, I didn’t know what Crohn’s was. I had literally only known one person who had it and I […]